Weekend from Hell

This weekend saw a really big long lasting a frequent cluster. Things actually started a couple of weeks ago. I had a single seizure and bounced back like nothing happened twice with a week in between each. There were also the occasional chompies which we thought we'd seen the back of. We thought it was the impending sign of a cluster and sure enough last Thursday evening it started.

Around every 4 hours through Friday they kept coming and then on Saturday it got worse to about every 2 hours and Sunday even worse, almost every hour. The only break I got seemed to be between midnight and 5am - which was the only time dad got any sleep.

With everyone out at work and college today I pretty much stabilised but there was no way I was getting up onto my feet. When Blaine got in there was plenty of mopping up to do as I just went to the toilet where I lay feeling sorry for myself.

Dad went to the vet to get some 10mg Diazepam tablets to see if this could help break the cluster. When he got in tonight he made sure I got up and got mobile. I walked like I was on ice for a while and out in the garden got a good hosing down in the sun to get me smelling nice again.

I was starving hungry and ate my dinner and went through a couple of bowls of water, and still looking for food now.

So now I'm up on my feet we've yet to see the Diazepam kick in and then no doubt I'll be super sleepy. Let's hope the seizures are done for this round. It's been a bad one.

Struggling On

This week's been no fun at all. Dad's been off work and that usually means lots of trips to the woods. But we only managed it a couple of days. The chompies have well and truly taken over. Every day has been at least two half hour chompie sessions. The only thing we're grateful for is that they aren't as draining or debilitating as last week. Afterwards I can stand up at least and am back to normal. So for much of the day I'm fine, but for those half hours there's head shaking and slobber flying everywhere.

The other day when I was in a chompie session mum noticed that when she gave me some ham that I'd immediately started chomping and couldn't eat until I'd finished. Then on Wednesday dad gave me some garlic bread (I've seen it, it's the future) and I went straight into a chompie. Afterwards dad gave it to me and again straight into a chompie. This happened about 3 more times, so I never did eat the garlic bread. Just seems strange that they seem to kick in when I'm happy or excited.

But we know it's a bad sign when I'm still scared of going upstairs. In some respects it's a good thing as at least I won't fall down them. But in the past sleeping on the floor upstairs was one of my favourite places.

All Time Low

Last week I started into a cluster on Mum's birthday. Wasn't good at all, but since then it's just been hitting even harder.

It started out as the usual kind of seizure where I'd thrash and paddle before going off for a nap. After a nap I'd get up refreshed and ready to face the world again. Over the next few days though things weren't getting any better and we figured we'd be in for a 48 hour cluster.

But we're still at it this weekend. Four days into a cluster of seizures that happen about every 6 hours. These ones today have been particularly nasty visits. I'd start off with a chompie and head shaking. Then five minutes later I'd go into the full twisting, thrashing and paddling. But I'd then not want a nap. I was all hyped up and wanting to run about, but my legs wouldn't carry me. Dad had to pin me down to stop me running off into things or falling and hurting my legs as I'd often end up splayed in all directions.

Following that only another 5 minutes I'd go into another chompie and head shaking. Afterwards I'm still unable to walk and another 5 minutes and I'd be having a shivery jaw that would rattle my teeth and curl my toes. So the seizure would last around half an hour, every six hours. But after that half hour I'm still not quite 100%, but I'm at least able to stand and walk. I'm just completely drained from the exertion of the seizure.

I'm really hoping this comes to an end soon... but is it a coincidence that Dad's off work agin this week?